Outbreak

By Gretchen Voss | Boston Magazine |

The call comes at 3 a.m. Shannon Allen rolls over in her bed at the Four Seasons in Los Angeles and grabs her cell phone. "Ray," a sleepy Shannon says, "it’s 3 in the morning." She knows the game tomorrow will be perhaps the biggest of his life. He’s the most focused, disciplined man she’s ever met: He should be sleeping.

"I’m praying," Ray Allen says, calling from the team’s hotel, the Beverly Wilshire.

"Ray, you’re ready. You’ve worked your whole life for this moment. You’re prepared…."

"No," Ray cuts her off. "I’m praying for Walker. He just doesn’t seem right."

Walker, their 17-month-old son, hadn’t been his usual wild-man self since they touched down in Los Angeles five days ago, on June 9. On June 10, Ray and the Celtics lost to the Los Angeles Lakers in Game 3 of the NBA Finals, giving L.A. their first win in the series. On the bus ride back to the hotel, Walker vomited all over Shannon’s No. 20 jersey. He spent the next few days lolling about, listless and lethargic, wanting only to eat and sleep. Juice, Momma, he said over and over. He had never asked his momma for juice before; Shannon thought he must be dehydrated, maybe jet-lagged. But nearly a full week later, Walker wasn’t feeling any better, and Ray, on his visit to the hotel earlier that evening, had been concerned. So concerned that he couldn’t sleep. So concerned that he prayed. So concerned that he calls Shannon now and wakes her up. "Please keep a close eye on him," he says before hanging up. "I’m worried."

Walker sleeps through the conversation in the bed next to Shannon. Soon she herself drifts off. But at dawn, Shannon wakes to Walker throwing up all over the sheets. She phones the hotel’s on-call pediatrician. Take him to Cedars-Sinai and have them run blood work, the doctor tells her. Just to be safe.

The hospital’s pediatric physician does not think drawing blood is necessary. Walker probably has a little bug, she says. But Shannon insists. Twenty minutes after leaving the room with the vial, the doctor returns, tears in her eyes, her face wan. She tells Shannon that her son has type 1 diabetes. A normal blood sugar count is between 80 and 120; his is 639. Walker’s pancreas is not functioning. His blood is full of ketones—the acid residue that develops when a body burns fat instead of sugar in a desperate bid for energy. If Walker doesn’t get insulin soon, he will die.

Shannon calls Ray. He’s in a cab on the way to the Staples Center for Game 5—the final game, if Boston wins. He wonders whether he should forget about basketball tonight. "Tell me what to do," he begs Shannon. She tells him to play the game. But that night Ray’s mind is elsewhere. He scores 16 points on 4-of-13 shooting, and the Celtics lose. He leaves the arena immediately afterward.

Coach Doc Rivers issues a vague statement to the media about Allen attending to a sick child. When the team boards a Boston-bound plane Monday morning to prepare for Game 6 on Tuesday night, Allen stays behind. It doesn’t take long for rumors to circulate through the blogosphere and the sports bars of Boston: Allen might miss the contest. He spends all of Monday at Cedars-Sinai with his wife and son.

Walker is by this point in stable condition. But the Allens listen to doctors and nurses and nutritionists explain how the boy’s life—and theirs—will never be the same. Walker will need daily shots of insulin. Mealtimes will become an exercise in vigilance.

Ray and Shannon hire a private nurse, who flies with the Allens overnight on the Celtics’ plane back to Boston. Further tests are scheduled at Children’s Hospital. But first, Ray Allen must play Game 6. That night, as part of his pregame ritual, he palms the parquet floor before trotting onto the court. He points to his family sitting courtside: Shannon and Walker, now joined by oldest son Walter Ray Allen III and daughter Tierra.

Allen scores 26 points, and the Celtics bring home their 17th NBA title, their first in 22 years. Allen’s family rushes the court. Confetti rains down and Ray reaches for Walker, hoisting the little boy in his arms.

Two days later, when Allen announces to the press that his son has diabetes but is doing well, newspapers and TV stations run a photo from that championship night—of Allen holding Walker and raising his thumb in triumph. It seems to tell the whole story.

But it doesn’t. Ann Marie Kreft, a mother in Weston, sees the Walker Allen piece on the news. A few weeks later she finds out the Allens live just over the town line, in Wellesley. For Kreft, Walker Allen has just added to the mystery she is desperately trying to solve.

  • Ingrid

    My child has had diabetes for many years. For a small town like Medfield, I always though something was wrong, when each year there were more and more kids visiting the school nurses office for lunch time blood testing.

  • Athena

    My child was diagnosed at the age of 6, and I also feel something is wrong considering when we moved to Leicester MA, my son as well as 6 others (if not more now) have been diagnosed at approx. the same age, same schools. Leicester MA should be on the outbreak list as well. I know the other mothers would agree as well. (Majority, does not run in the families, and not mine). Love this article and would love to get in touch with anyone in this article.

  • Lisa

    My daughter is 1 of 10 kids (we know of) that have juvenile diabetes living in Acton. She was diagnosed almost 2 years ago, just after her 5th birthday. I too would like to get in touch with someone in this article.

  • Athena

    The diabetics with type 1 is much more than 6 children, and it's a small town….could the arsenic in our well water be the cause? Our town is loaded with children getting diagnosed around the same age and area.

  • Laura

    This article is very interesting ~ as the mother of the child diagnosised at age 3 on the South Shore ~ I would love to talk to any researcher about this ~ my child's school had had type I's before but my child was the 1st one in the school at the same time and since then 4 others in our district have been diagnosised. Our small town has 4 elementary schools and the numbers are on the rise ~ any help our family can be – bring it on!!!

  • Sue

    Look to the increased vaccination schedule for our children. Read Dr. Classen's work … Look to the Prevnar vaccination. Vaccinations trigger type 1 diabetes in children!

  • Lisa

    I live in Methuen, MA. When my daughter was diagnosed 4 years ago, another boy in her school was diagnosed a day or two before her. When she went back to school she was one of 8 or 9 kids, over the years those older kids have moved on, for a while she was the only one, now she is 1 of I think 7 kids at the same school!!!! This is not a coincidence. Some kids move into the district with the diagnosis, but always in the late winter early spring months you will hear of one or two more children diagnosed with the same thing! Presently, I am going to try and find out in Methuen what is going on!

  • Lisa

    My daughter had that vaccination….it was about a year before she came down with diabetes. The doctors offered this new vaccine that helped to prevent the colds that cause ear infections and I took advantage of it….now I read up on Prenvar and what Dr. Classen says….OMG!!!!! I will call my pediatrician tomorrow to make sure I am certain of what I am talking about and I will post here.

  • Lisa

    It was Prevnar, August 03. Diagnosis of Type 1 Diabetes March, 05!

  • Jill

    My 11 yr old was just diagnosed in May of this year. Two weeks after her best friend! There are many children in our small town Scituate. What is going on?

  • Lisa

    Contact me if you want to talk. I've been where you are….

  • Anonymous

    my daughter diagnosed age 23 coxsackie virus as child. no symptoms, fitness, however, blood test showed she has antibodies and runs high in morning 130. Comes down after eats in a.m. Dr. says because she has antibody she is type 1. Believe because she always exercised and ate healthy is why she wasn't symptomatic and kept under control. We are still very confused at what caused this and still is not symptomatic with thirst, urination, hunger, etc. On insulin only at bedtime, 5 units a1c 6.2 over past year. ? is she really diabetic. Lately eating certain foods increasing blood sugar at times 180 during day. Would like another opinion.

  • Pam

    My daughter was DX at age 6, 21 years ago. She was normal weight until age 4 when something triggered extreme weight gains while consuming less than 1000 calories a day. Then came the DX of Type I diabetes. Children for the past 30 years have been given routine dosages of antiobiotics for ear infections. My daughter took ampicillin almost every 6 weeks for ear infections. At age 6, she was given the pill form of penicillin. She broke out and within a month was in the hospital with diabetes. I will always believe these high dosages of antibiotics are the trigger for weight gain and diabetes in children.

  • Rose

    Question to all of you, as this story ran again the other night on tv, are any of your chldren who were diagnosed conceived by fertility methods? Just brainstorming to get to the bottom of this.

  • Pat

    Our 6th grade here in Marlborough, CT has 4 type 1′s out of 88 total (my son and another on our street diagnosed about 6-7 months apart). Stories of kids in our town getting a bug after swimming in the town lake and getting diabetes a few years later.

    • Steve

      I had 2 of 3 children diagnosed on South Shore both within months of each other. But they are 6 years difference in age. Something is going on and I don’t feel the right questions are being asked to get the answers.