Feature Article

The Shocking Truth

By Paul Kix

Page 2 of 7


In the beginning there were only two students, a schizophrenic and an autistic teenager. Israel had set up his day school, such as it was, in Providence, Rhode Island, in 1971, calling it the Behavior Research Institute. He opened a residential program the following year in a wing of the schizophrenic's home in nearby Cranston. By 1975, BRI had another home in Seekonk. Two years later, Israel founded a sister branch of BRI in California. From there BRI opened residential homes in Attleboro and Rehoboth. Soon Israel had lost interest in Walden Three; he wanted to oversee his school.

They used aversive therapy at BRI. They used positive reinforcement, too: food and toys and a near-continuous stream of compliments for behaving well. But it was the aversives that drew attention. Teachers pinched students, spanked them with spatulas, stuck ammonia pellets beneath their nostrils, put them in white-noise helmets. Israel saw aversive therapy—and still sees it—as the best response to self-injurious and disruptive behavior. He almost never doped his pupils, a position he holds to this day. He believes drugs often only sate the patient; they do not solve her problems. Israel, then as now, put his trust in punishment.

It wasn't long before people wondered if that trust was misplaced. In 1979, the state of New York issued two reports from agencies that oversaw the Behavior Research Institute. Fifteen New Yorkers at that time attended the school. (New Yorkers today still account for the highest percentage of the school's student body.) The bright red buttocks and scrapes across the cheek; the plaintive cry of a student who said, "Take me home, I want to go home"; the weird, oft-repeated, and grammatically challenged cheers from teachers ("Good working without stopping")—it led the authors of one report to write that the school's "rigidly implemented" program was the "singular most depressing experience that team members have had." That was not the worst of it, though.

On July 17, 1981, at BRI's sister school in Northridge, California, staffers restrained 14-year-old Danny Aswad face-down on his bed. Aswad died in that position. The autopsy report concluded that he died of natural causes, but the state of California placed the school on a two-year probation anyway. In 1982, the state's Department of Social Services filed a 63-page legal complaint alleging abuse at the school. The complaint claimed, among other things, that BRI withheld meals; showed staff how to hide students' injuries from regulatory agencies; and, strangely, encouraged students to act out for a film crew, the footage to be used later to demonstrate how the children had behaved before BRI. Later that year the state reached a settlement with BRI in California. The school couldn't use anything more punishing than a water spray. The state also forbade Israel—who says he'd turned over control of the campus before Aswad's death—from stepping foot on the Northridge property. But this, too, was not the worst of it.

In 1985, Vincent Milletich died. The 22-year-old from Queens, New York, attended the school in Providence, as did, by that time, roughly 60 others. On July 23, for acting out at the BRI residential home in Seekonk, Milletich was restrained in a chair, his hands and feet tied by plastic cuffs, his face masked and his head helmeted, the earphones inside it emitting white noise. He suffocated in there, asphyxiation. Though BRI was not found to have caused Milletich's death, a district court judge ruled it was negligent for approving the therapy and not carrying it out with sufficient supervision.

Later that year, the state's Office for Children, which regulated the school because its residential homes were in Massachusetts, issued an order to close the Behavior Research Institute. The school appealed the closure, and countersued the Office for Children. Then a judge recommended BRI stop using aversives. Advocates for the disabled cheered the move; many of them had written to Governor Dukakis asking him to shutter BRI, but to no avail.
Without the treatment, the school said, its students seriously regressed. For Israel, this meant the therapy had been working. But others drew a different conclusion. The children "are controlled by the threat of punishment," one of the New York reports had said. "When that threat is removed, they revert to their original behaviors."

Hoping someone would see things his way, Israel brought one of his most terribly self-abusive students before Judge Ernest Rotenberg at a hearing at the Bristol County Probate Court in 1986. After Israel detailed the student's history, Rotenberg ruled that she was unable to make her own treatment decisions. And if she were, she'd choose BRI. The Office for Children and BRI settled the following year, the state agreeing to pay $580,000. Rotenberg allowed BRI to use aversives, as long as each student's treatment plan was approved by the probate court. He also appointed a mediator to hear future disputes.

But the Milletich affair, too, was not the last of the school's troubles. In 1990, BRI student Linda Cornelison died. She was mentally retarded, could not talk, and one day began clutching her stomach on the bus to school. Once there, she lay on a couch, but a nurse thought her illness was an act, according to a report later filed by the Massachusetts Department of Mental Retardation. After school, Cornelison returned to her BRI-run home in Attleboro, where staff gave her 13 spatula spankings, 29 finger pinches, and 14 muscle squeezes, and five times forced her to inhale ammonia. She died in the hospital early the next morning from complications related to a gastric perforation. Her mother said Cornelison had never had gastrointestinal problems before, according to a medical report. Though the department's report said the school "violated the most basic codes and standards of decency," it found that neither the dereliction of care nor the administration of aversives had killed her.

Some time after Cornelison's death, Israel eschewed the punishment he'd favored for two decades. He would instead use something more uniform, and far more painful.

This is the machine that led to the machine. It's called the Self-Injurious Behavior Inhibiting System (SIBIS). There are two models, the simpler consisting of an electrode and a radio transmitter wrapped by Velcro around the arm or leg. The administrator holds the control and, when necessary, presses the shock button. It feels like the hard slap of a rubber band, and lasts nearly as long: 0.2 seconds. In an academic paper on SIBIS that appeared in 1990, the authors said its shock produced an "almost complete elimination of the self-injurious behavior."

Israel's school was one of the first to use SIBIS. What Israel liked was the same thing the study's authors liked. The aversive was consistent: It delivered the same shock, with the same power, for the same duration, every time—unlike, say, a spatula spank, whose parameters were not nearly as defined. Its intent was clear: There was no chance the student would confuse the aversive with some other action. And it was discreet: The shock didn't cause the distraction, or require the manpower, of restraining someone, which meant it could be delivered in a classroom setting while other students went about their work.

The Behavior Research Institute tested the device on 29 students over 14 months. One of them was Brandon Sanchez, the autistic nephew of state Representative Jeff Sanchez. Brandon banged his head until he cracked it open. He once chewed off part of his tongue. He was a ruminator, too: He would vomit, chew the vomit, swallow it, and vomit again. The acidity was burning his esophagus; the vomiting was causing him to lose weight. Israel thought SIBIS might be the only way to save this 12-year-old's life. Brandon was down to 52 pounds.

Israel and his staff started in with the treatments. Fifty shocks became 100; 100 became 500; 500 became 1,000, and still they shocked more. Brandon wasn't responding. So, 2,000 shocks. And then 3,000, 4,000. After roughly 5,000 shocks in one day, Israel told his staff to stop.

The shocks weren't strong enough, Israel thought. He asked SIBIS's developers to increase the voltage. They refused. And that's when Israel made his own machine.


 

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User comments

Child abuse
Posted by | Jul. 1, 2008 at 2:05 PM
COMMENT:
Since when are parents allowed to have their children abused? DSS would intervene in any other situation, if children were being hurt, except at JRI. Why doesn't the Commonwealth force the school to use positive behavioral intervention with the same intensity and staffing numbers and then state knowledgeably whether the behaviors can be modified without punishment.
It's time to wake up
Posted by | Jul. 3, 2008 at 7:07 AM
COMMENT:
As a family member, professional and advocate for many years, there are many positive ways to deal with the serious challenges of individuals so demanding. The money and the expertise is there. Our state and the people of Massachusetts need to find the will and the outrage to demand change and programs that really meet people's needs as human beings. Our family and many others have been able to do so but not without lots of work, research, advocacy and refusing to take NO as an answer.
Call your legislators
Posted by | Jul. 3, 2008 at 6:51 PM
COMMENT:
Please do more than post message here. Call your state Senators and Representatives (617 722-2000) and express your outrage to them. Advocates have tried unsuccessfully for over 20 years to either ban aversive treatment or have tighter regulations. We need help from voters who are outraged!
Simplistic answers to complicated problems
Posted by | Jul. 6, 2008 at 11:02 AM
COMMENT:
Massachusetts is notorious for short-term politically-sensitive solutions to problems that are political nowhere else. When someone develops a program that dependably out-performs JRI, there will be no more JRI. Until then, walk a mile in the shoes of parents who have no other options. Stories like Haleigh Poultre in today's Sunday Globe are not unique. Complicated questions demand complicated answers, unfortunately. Ask any MA baby boomer what state institutions were like prior to community-based treatment. JRI is like Disney World in comparison.
"Oversight" is definitely needed at JRC
Posted by | Jul. 6, 2008 at 1:26 PM
COMMENT:
I am one of the former JRC staff quoted in this article. What is largely missing at JRC is state oversight, where appropriate individuals review the treatments that students are receiving on a regular basis and monitor what treatments are necessary after other methods have been exhausted. Every behavior for which student receives shocks needs to be monitored. Psychologists have left because they were not permitted to use other approaches published in psyciatric journals before resorting to shocks. JRC currently has free reign to shock students for minor behaviors. They use the major behaviors as an excuse, and continue to shock students after progress is made and other methods are available. Example: student shocked for closing his eyes for five seconds AFTER he quit self-abusive and aggressive behaviors and had become pleasant. That is when additional behaviors are stacked on without safegaurds that NEED to be implemented. In addition, nobody seems to monitor the stress of oth
the dehumanization of people with disabilities
Posted by | Jul. 13, 2008 at 2:00 PM
COMMENT:
It is sad to see that Mr. Kix bought into the BRI/JRC brutality, and done his bit to contribute to the dehumanization of people with disabilities. There is no other class of people whose behavior would allow this kind of torture. Furthermore there are more deaths at BRI (omission)than described in this article and Iwata developed the SIBIS at Johns Hopkins (error, one of many) as well as many other errors or omissions. This article is a tragedy. Some of us loved our tough kids enough to work with them and keep trying.
torture
Posted by | Jul. 15, 2008 at 8:38 AM
COMMENT:
Twenty three years ago when I was President of the Autism society in Massachusetts I wrote a letter to the Globe in reference to the BRI abomination. Here is an excerpt:" If I were to threaten to take a dog and shackle it, helmet it, deprive it of food and spray it with ammonia, I would be castigated and hanged by every jury in the land. Perhaps there is an underlying innate prejudice that relegates anything outside the norm to second-class status, and thus experimentation and abuse are viewed with callous indifference." 23 years later and the only thing that has changed is that the torture has been refined to astronomical proportions. Wrap it any package that you like, sanction it with desperate parents, throw a few sanctimonious PHDs at it and it still remains the same. It is torture. Shame on all of us for tolerating this criminal behavior. I thank God that my own son never fell victim to this heinous perversion.
Emotional and Physical Damage Done by Shock
Posted by | Jul. 18, 2008 at 3:00 PM
COMMENT:
From two whistleblower reports and media coverage I've seen, other autistic children and adults in the vicinity of the person about to be shocked also start screaming in terror when a JRC person reaches for their shock belt as they think that the shock may be meant for them. At times, these autistic people get shocked because they screamed in fear of possibly being shocked. This is barbaric and needs to stop -- as does the heavy drugging of the autistic in other facilities.
Since when are parents allowed to have their children abused?
Posted by | Jul. 1, 2008 at 10:00 PM
COMMENT:
In response to: Since when are parents allowed to have their children abused? More often than you think. see www.cafety.org
torture?
Posted by | Aug. 22, 2008 at 12:09 AM
COMMENT:
The last two pages give a really haunting argument for the use of GED. Read it before trying to argue. You can't address the issue by shutting down a solution you don't like. I myself think that if the punishments were less strict, tragedies could be averted. But I wonder how many more tragedies there would be without this torture/aversive treatment solution. Face it, little to no progress has been made in alternative fields. It's not enough to be useful. The GED is. If you actually manage to shut down the JRC or ban aversive treatment, you'd better take responsibility for those autistic, bipolar, troubled kids, because you're taking away their last lifeline.
DO SOMETHING ABOUT IT!
Posted by | Sep. 21, 2008 at 11:06 PM
COMMENT:
Those of you who live in the states that regulate these treatment center must contact your government officials and put a stop to this. Call your local newspapers! TV stations! Please help these children. Please become involved.
Horrified To Learn of This
Posted by | Sep. 23, 2008 at 11:07 AM
COMMENT:
I can't begin to tell you how shocked and horrified I am by this article. I can't believe this mode of treatment is being used in this age of advanced knowledge and heightened awareness of mental illnesses. I hope that public outrage will have some effect upon the people who are doing these things to human beings who are at the mercy of the system and those who run it.
Former Student
Posted by | Oct. 13, 2008 at 4:15 PM
COMMENT:
As a former student who was on the GED, I can honestly attest that JRC is not the horror house the media portrays it to be. I can also attest that Dr. Israel is not the psycho people make him out to be. There are several things about JRC that I disagree with. But in all honesty, JRC gave me my life back. Before JRC, I was in and out of all kinds of placements and I was doped up on meds to the point of oblivion. Once I started at JRC and after the GED was implemented, I began living as normal a life as my disability would allow. The placements I was at prior to JRC told my parents that me graduating from high school and living a normal adult life would be nothing short of a miracle. Once I got to JRC, they told me and my parents that graduating from high school isn't a miracle, its a reality. And they were right, I did wind of graduating and with high honors I might add. It took a little longer and a little more effort than it would most people, but in the end I did it. As far a
Former Student (Continued)
Posted by | Oct. 13, 2008 at 4:17 PM
COMMENT:
as the program itself is concerned, there are some things that I disagree with, especially when it comes to how the GED is used. However, if the GED were removed, the results would be nothing short of catastrophic. I do believe that JRC treats some behaviors with the GED that are unnecessary and I do believe that the approval process should a little more rigorous than it currently is. I truly don't believe that the GED is for everyone and I truly don't believe that it should be an common option in treating problem behaviors. However, when the alternative is self inflicted injury or death, being warehoused in hospitals or jails, or being doped up on meds to the point where you can't even recognize your own mother, there is a place for the GED. Kudos to the author for equally presenting both sides of this story which is something that journalist generally neglect to do when reporting about JRC.

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