Feature Article

The Shocking Truth

By Paul Kix

Page 3 of 7


The Graduated Electronic Decelerator was roughly three times stronger than SIBIS when Israel and engineer David Marsh finished it in December 1990. Its shock lasted two seconds, not two-tenths of one.

But the human body is a curious thing. It can adapt to almost anything, including 60 volts and 15 milliamps of electricity. So in 1992, with 52 students already on the GED, the school developed the GED IV. Israel himself has called its shocks "very painful."

It's probably best to provide some context here, in order to give a better understanding of what was about to happen. Behavior analysis is an evolving field. In the years before the GED's invention, clinicians and academics published studies concluding that positive reinforcement, with no aversives, could work on students as difficult as Israel's. If you did "functional analyses"—monitor patients day and night, figure out what was making them angry, sad, or frustrated, and then redirect those feelings to something positive—you could stop their behaviors. Hundreds of articles and entire books on this so-called positive-behavior support followed. Clinics and schools across the country, including some of the best in New England, began to implement (and continue to implement) its findings.

BRI came under intense pressure because of this burgeoning research. Undercutting the claims Israel made were those of O. Ivar Lovaas, a psychologist at UCLA. Like Israel, Lovaas once espoused the benefits of electric shocks. In the early 1970s, Lovaas even used cattle prods on children. But in 1987 he published a study finding that through 40-hour weeks of one-to-one therapy, autistic preschoolers could attain "normal functioning." In 1993, Lovaas condemned his former self, saying that shock therapy was a short-term solution that produced no long-term gains.

Into this milieu now stepped Philip Campbell, who in 1991 became commissioner of the Massachusetts Department of Mental Retardation, the agency regulating BRI. He had previously been the executive director of the Massachusetts Association for Retarded Citizens, a nemesis of BRI and Israel. Campbell knew the literature. He despised the new GED, and wasted no time in going after its creator.

It was a nasty fight. Campbell was eventually found to have leaked erroneous reports about BRI to the press, to have hired a team with a known bias against the school to investigate it. BRI said the Department of Mental Retardation was in violation of the state's 1987 agreement with the school. In 1994, to show its fortitude and to honor the judge who had overseen that agreement, the Behavior Research Institute renamed itself the Judge Rotenberg Center.

The brawl would go on for three more years. But then in 1997 the Massachusetts Supreme Judicial Court affirmed a previous decision finding Campbell and his department in contempt of court for various things, including lying under oath. Campbell, who was never prosecuted for perjury, resigned. The state was ordered to pay JRC more than $1 million in court costs.

The court placed the department in receivership, leaving JRC to gain licensure and certification through an independent attorney appointed by the probate court. The move meant, effectively, that efforts to regulate the school would be difficult to carry out.

This is the machine as big business.

Protected by the court orders, JRC expanded quickly, its enrollment going from 110 in 2000, to 145 in 2002, to 228 last year. As enrollment increased, so did funding, because school districts and state governments pay to send their kids there. JRC's budget went from $18 million in 2000 to $56 million in 2006. What were once a few residences for the students grew to 33 homes spread across the southern suburbs of Boston, from Stoughton to Norfolk. JRC employs about 900 people: psychologists and teachers and night staff and orderlies and everyone it takes to care for a population that today comes from 10 different states. As of the last public filing, Matthew Israel made $321,000 a year.

Part of the increase in enrollment is due to the students JRC now serves. They are no longer a largely autistic and mentally retarded clientele. Today, roughly half of the students are considered to be "high-functioning," their impairment behaviorally based, such as kids with ADHD who've been in trouble with the law. Indeed, some of JRC's students come from jail.

Handling a population like that is tough. One former staff psychologist says around 2001, the school's policy switched from educating and treating to simply keeping students in line. "Israel couldn't stand them not behaving in a perfectly controlled way," the psychologist says.

JRC has always believed in punishing not only the negative behavior, but also the actions that presage it: A face-slapper could be shocked for simply raising his hand. This is called "treating the antecedent." A lot of things can be antecedents at JRC: yelling, refusing a teacher's order, talking out of turn. Another psychologist, who left in 2002, says these aren't precursors to violence so much as ordinary classroom disturbances.

JRC has video monitors in every room of the school, in every residence—has had them since 1975. Certain staffers, called quality control, sit in a control room day and night, a wall of television monitors and computer screens before them, watching everyone, and, because the rooms are miked, hearing everything. The control room is ostensibly to ensure that students are shocked for the inappropriate behaviors that an employee might miss; when that happens, quality control phones the staffer in the room, who then applies the shock. But the people who sit in the control room serve another purpose: They're watching their own. If, say, a teacher in a classroom refuses to shock a kid, he or she is written up. The write-ups carry the Orwellian title "Performance Improvement Opportunities." Anyone can tattle on anyone else, regardless of station. The school has staffers whose job is to read and track these forms. Get enough of them, and you're gone.

"Oh my God, I hated that place," says Jessica Croteau, a teacher at JRC who started in August 2005 and quit seven months later. "I stood there for eight hours a day and basically watched their behaviors and marked it in their behavior logs." Susan Wilson taught science for six years at JRC. "There's a lack of dedication to education. And it's across the board," Wilson says. What bothered both women, too, was the constant surveillance. Croteau became so paranoid that she and a fellow teacher ate lunch in that teacher's Jeep. They vented until it was time to go back inside.


 

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User comments

Child abuse
Posted by Anonymous | Jul. 1, 2008 at 2:05 PM
COMMENT:
Since when are parents allowed to have their children abused? DSS would intervene in any other situation, if children were being hurt, except at JRI. Why doesn't the Commonwealth force the school to use positive behavioral intervention with the same intensity and staffing numbers and then state knowledgeably whether the behaviors can be modified without punishment.
It's time to wake up
Posted by Anonymous | Jul. 3, 2008 at 7:07 AM
COMMENT:
As a family member, professional and advocate for many years, there are many positive ways to deal with the serious challenges of individuals so demanding. The money and the expertise is there. Our state and the people of Massachusetts need to find the will and the outrage to demand change and programs that really meet people's needs as human beings. Our family and many others have been able to do so but not without lots of work, research, advocacy and refusing to take NO as an answer.
Call your legislators
Posted by Bill | Jul. 3, 2008 at 6:51 PM
COMMENT:
Please do more than post message here. Call your state Senators and Representatives (617 722-2000) and express your outrage to them. Advocates have tried unsuccessfully for over 20 years to either ban aversive treatment or have tighter regulations. We need help from voters who are outraged!
Simplistic answers to complicated problems
Posted by Anonymous | Jul. 6, 2008 at 11:02 AM
COMMENT:
Massachusetts is notorious for short-term politically-sensitive solutions to problems that are political nowhere else. When someone develops a program that dependably out-performs JRI, there will be no more JRI. Until then, walk a mile in the shoes of parents who have no other options. Stories like Haleigh Poultre in today's Sunday Globe are not unique. Complicated questions demand complicated answers, unfortunately. Ask any MA baby boomer what state institutions were like prior to community-based treatment. JRI is like Disney World in comparison.
"Oversight" is definitely needed at JRC
Posted by Greg | Jul. 6, 2008 at 1:26 PM
COMMENT:
I am one of the former JRC staff quoted in this article. What is largely missing at JRC is state oversight, where appropriate individuals review the treatments that students are receiving on a regular basis and monitor what treatments are necessary after other methods have been exhausted. Every behavior for which student receives shocks needs to be monitored. Psychologists have left because they were not permitted to use other approaches published in psyciatric journals before resorting to shocks. JRC currently has free reign to shock students for minor behaviors. They use the major behaviors as an excuse, and continue to shock students after progress is made and other methods are available. Example: student shocked for closing his eyes for five seconds AFTER he quit self-abusive and aggressive behaviors and had become pleasant. That is when additional behaviors are stacked on without safegaurds that NEED to be implemented. In addition, nobody seems to monitor the stress of oth
the dehumanization of people with disabilities
Posted by barbara | Jul. 13, 2008 at 2:00 PM
COMMENT:
It is sad to see that Mr. Kix bought into the BRI/JRC brutality, and done his bit to contribute to the dehumanization of people with disabilities. There is no other class of people whose behavior would allow this kind of torture. Furthermore there are more deaths at BRI (omission)than described in this article and Iwata developed the SIBIS at Johns Hopkins (error, one of many) as well as many other errors or omissions. This article is a tragedy. Some of us loved our tough kids enough to work with them and keep trying.
torture
Posted by ellen | Jul. 15, 2008 at 8:38 AM
COMMENT:
Twenty three years ago when I was President of the Autism society in Massachusetts I wrote a letter to the Globe in reference to the BRI abomination. Here is an excerpt:" If I were to threaten to take a dog and shackle it, helmet it, deprive it of food and spray it with ammonia, I would be castigated and hanged by every jury in the land. Perhaps there is an underlying innate prejudice that relegates anything outside the norm to second-class status, and thus experimentation and abuse are viewed with callous indifference." 23 years later and the only thing that has changed is that the torture has been refined to astronomical proportions. Wrap it any package that you like, sanction it with desperate parents, throw a few sanctimonious PHDs at it and it still remains the same. It is torture. Shame on all of us for tolerating this criminal behavior. I thank God that my own son never fell victim to this heinous perversion.
Emotional and Physical Damage Done by Shock
Posted by Kevin | Jul. 18, 2008 at 3:00 PM
COMMENT:
From two whistleblower reports and media coverage I've seen, other autistic children and adults in the vicinity of the person about to be shocked also start screaming in terror when a JRC person reaches for their shock belt as they think that the shock may be meant for them. At times, these autistic people get shocked because they screamed in fear of possibly being shocked. This is barbaric and needs to stop -- as does the heavy drugging of the autistic in other facilities.
Since when are parents allowed to have their children abused?
Posted by Anonymous | Jul. 1, 2008 at 10:00 PM
COMMENT:
In response to: Since when are parents allowed to have their children abused? More often than you think. see www.cafety.org
torture?
Posted by Anonymous | Aug. 22, 2008 at 12:09 AM
COMMENT:
The last two pages give a really haunting argument for the use of GED. Read it before trying to argue. You can't address the issue by shutting down a solution you don't like. I myself think that if the punishments were less strict, tragedies could be averted. But I wonder how many more tragedies there would be without this torture/aversive treatment solution. Face it, little to no progress has been made in alternative fields. It's not enough to be useful. The GED is. If you actually manage to shut down the JRC or ban aversive treatment, you'd better take responsibility for those autistic, bipolar, troubled kids, because you're taking away their last lifeline.
DO SOMETHING ABOUT IT!
Posted by Anonymous | Sep. 21, 2008 at 11:06 PM
COMMENT:
Those of you who live in the states that regulate these treatment center must contact your government officials and put a stop to this. Call your local newspapers! TV stations! Please help these children. Please become involved.
Horrified To Learn of This
Posted by Anonymous | Sep. 23, 2008 at 11:07 AM
COMMENT:
I can't begin to tell you how shocked and horrified I am by this article. I can't believe this mode of treatment is being used in this age of advanced knowledge and heightened awareness of mental illnesses. I hope that public outrage will have some effect upon the people who are doing these things to human beings who are at the mercy of the system and those who run it.
Former Student
Posted by Anonymous | Oct. 13, 2008 at 4:15 PM
COMMENT:
As a former student who was on the GED, I can honestly attest that JRC is not the horror house the media portrays it to be. I can also attest that Dr. Israel is not the psycho people make him out to be. There are several things about JRC that I disagree with. But in all honesty, JRC gave me my life back. Before JRC, I was in and out of all kinds of placements and I was doped up on meds to the point of oblivion. Once I started at JRC and after the GED was implemented, I began living as normal a life as my disability would allow. The placements I was at prior to JRC told my parents that me graduating from high school and living a normal adult life would be nothing short of a miracle. Once I got to JRC, they told me and my parents that graduating from high school isn't a miracle, its a reality. And they were right, I did wind of graduating and with high honors I might add. It took a little longer and a little more effort than it would most people, but in the end I did it. As far a
Former Student (Continued)
Posted by Anonymous | Oct. 13, 2008 at 4:17 PM
COMMENT:
as the program itself is concerned, there are some things that I disagree with, especially when it comes to how the GED is used. However, if the GED were removed, the results would be nothing short of catastrophic. I do believe that JRC treats some behaviors with the GED that are unnecessary and I do believe that the approval process should a little more rigorous than it currently is. I truly don't believe that the GED is for everyone and I truly don't believe that it should be an common option in treating problem behaviors. However, when the alternative is self inflicted injury or death, being warehoused in hospitals or jails, or being doped up on meds to the point where you can't even recognize your own mother, there is a place for the GED. Kudos to the author for equally presenting both sides of this story which is something that journalist generally neglect to do when reporting about JRC.
that sloppy dresser gives shocks to kids for failing to dress neatly
Posted by KateGladstone | Jan. 7, 2009 at 3:33 AM
COMMENT:
Your article notes the sloppy dress habits of this torture-meister who (according to the procedural manual of the school he founded) requires administering electric shocks to children for "failure to maintain a neat appearance." (Google this phrase plus "JRC" to see documentation of this.) If Doctor Matthew Israel really believes in electric-shock teaching-by-torture as the key to a utopian society of the perfectly behaved, let him strap his machine onto himself and invite staffers and students to administer the punishment he commands for all such breaches.
I was once a staff at JRC
Posted by Marissa | Aug. 19, 2009 at 6:51 AM
COMMENT:
JRC was one of the worst schools you can ever imagine. The children were severely mentally reatarded and autistic, although regardless of this, they have been recieving multiple skin shocks for minor behavior. I mean come on these are people neverless, people with severe disabilitie, and some even none verbal. JRC seemed more like a jail than a school to me as they used transportation restraints on hands and even feet. Real prison like handcuffes, straightjackets, white noise helmets and even four point boards and four point chairs. The disabled persons there had absolutely no freedom, and most whom were constanlty restrained and got skin shocks. I once had to work at a JRC residence (Lorusso) and one of the patients was on the phone with her mother. I was asked to stand near the phone and monitor their conversation. I mean how could that be? Whenever a patient was on the phone his/her conversation had to be monitered. That sounds like no privacy or human rights whatsoever to

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