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The Shocking Truth

July 2008
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Something else you don't know about what the parents go through:
You don't know what passes for treatment, for established science, at other schools. And you don't know that because few people in the behavior world will discuss it.

The documented success of positive-behavior support is, of course, the main argument against JRC. Yet that success is open to interpretation. Start with the patriarch of the movement, O. Ivar Lovaas, the one who used cattle prods on children before publishing a study in 1987 saying there was a better way. Lovaas's therapy, even then, worked only half the time. You'll find the same lackluster results in the definitive study of positive-behavior support, published in 1999 by the American Association on Mental Retardation. It found that only 68 percent of the subjects showed a dramatic decrease in problematic actions. Moreover, a 2004 book edited by academics at Ohio State, Penn State Harrisburg, and the Sage Colleges Center for Applied Behavior Analysis shows that positive-behavior support practitioners generally don't attempt to treat the most difficult cases. Presented with such children, they find another school for them.

JRC gets these kids. That's really what no one talks about. On average, its students have been to five other treatment centers. JRC will let you look at some of the redacted transfer forms from positive-behavior support schools along the Atlantic seaboard. Schools like these have sent at least 10 of their students to JRC within the past eight years. One of the schools, the prestigious New England Center for Children in Southborough, acknowledges in its report that the child it transferred to the Judge Rotenberg Center might need aversives. Even more surprising: JRC beats the positive-behavior schools at their own game. Another student in the placement files, a highly violent child from the May Institute in Arlington, has not needed the GED in JRC's care.

You'd think the state's Department of Mental Retardation would acknowledge such accomplishments. Louisa Goldberg of Newton says after a New Hampshire school told her it would no longer take her son Andrew—staffers were afraid of him—she looked for more than two months at roughly 40 schools from a roster provided by the state. None wanted Andrew. And JRC was not on the list. "That happens with loads of Massachusetts parents," she says.

Such are the politics of mental health. Politics that allows the state of New York to author that scathing 2006 report about the school when, seven months earlier, in November 2005, it had issued another report finding little wrong. What changed between the dates was the media attention brought by Evelyn Nicholson's lawsuit, the mother of Antwone. Her attorney, Ken Mollins, made sure the case received maximum exposure: on WNBC Channel 4 in New York, Newsday, CNN. What the media failed to report, however, is that Nicholson and Mollins had done this before—specifically in 2005, when Mollins complained to New York's Department of Education about the small size of the time-out room at Nicholson's younger son's school.

Given the popular conception of JRC, "you'd think I'm a monster," says Kate VanOrden. But you'd be wrong. VanOrden is the sort of mother who, long before she had kids, or even a husband, interviewed teachers and principals in the various towns of suburban Syracuse, eventually settling in Fayetteville, 15 minutes to the east, solely for its school district. A short-haired, big-bifocaled Jewish woman, VanOrden has five adopted children, all of them black, and, because she never found that husband, a sixth child, a daughter now 17 years old, through artificial insemination. What makes VanOrden's vantage point unique is that she's an Ivy League–educated psychiatrist. She has worked in a violent inpatient ward at a state psychiatric hospital. And she sought out JRC.

The trouble for VanOrden's oldest child began in kindergarten. Carino stood out—and not just because he was a young black kid in the suburbs of Syracuse. Carino couldn't color within the lines; he couldn't cut and paste where he wanted to. He lacked fine motor skills.

He was otherwise smart; he read voraciously, in the years to come inhaled history. But his impediment kept him from excelling in math, and that led him to despise school, which only worsened his grades, which only further hurt his self-confidence, until Carino found that misbehaving in class was an effective and sometimes fun way to vent his frustrations.

VanOrden saw where this was heading. A problematic black kid with an aggressive streak and academic difficulties? These were some of her patients. The Fayetteville school district ultimately wanted nothing to do with Carino. Neither did a day school more than an hour away, where Carino, then 13, ate his way through his unhappiness until he weighed 260 pounds. He spent the majority of each day in a 4-by-6-foot padded cell, throwing himself against its oak door, an even larger man on the other side, pinning him in there. The aggravation at school became anger at home, and the anger violence, and the violence one awful night in the bathroom, during which Carino tore from the wall a plastic towel hook, taking its broken end and putting it to his mother's neck.

She yelled to the other kids to stay in the bedroom, lock the door, and call 9-1-1. VanOrden knew all the proper restraints and takedowns. So even though Carino had her in a bear hug of sorts, still holding that towel hook, "saying he's going to shove it in my bleep, bleep, bleep," it wasn't long before VanOrden backed him into a corner from which he could do no damage. They struggled like that until police came.

It killed her, but she put him in juvenile detention. When he got out there was only one place she wanted him to go.

VanOrden might never have found JRC had a social worker she'd known from another mental hospital, whose son was there, not raved about the place. True to form, VanOrden had called before there was a need to. "Remember how I told you I interviewed before my children were born? Well, when I saw any hint of the freight train coming, I talked with JRC—about two years before I thought he might actually go." When she called the school, officials there insisted they meet. VanOrden said she didn't know when she could get off work. No, the school said, we're coming to you.

They spoke for more than four hours in VanOrden's office. "Two guys with this great big PowerPoint thing and their papers and portfolios and all that stuff," she says. "I'll never, never forget it. They had a thoughtful, coherent, fully developed answer to every legal, psychiatric, medical, worst-case scenario. They had the whole thing." Carino's school district finally approved his placement with JRC in 2004.

This month will mark Carino's fourth year at JRC. He is 19. He is learning at his own pace and is scheduled to receive his high school diploma before he turns 21. He isn't on the GED; the school's reward system was enough to decrease his outbursts. But he's wanted to be on it. "My son begged for it for two years," VanOrden says. "He said that it was like going into the Marines. If he had the GED, he knew that he would stop behaving badly."


 
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User Comments:

Child abuse
Posted by Anonymous | Jul. 1, 2008 at 2:05 PM
COMMENT:
Since when are parents allowed to have their children abused? DSS would intervene in any other situation, if children were being hurt, except at JRI. Why doesn't the Commonwealth force the school to use positive behavioral intervention with the same intensity and staffing numbers and then state knowledgeably whether the behaviors can be modified without punishment.
It's time to wake up
Posted by Anonymous | Jul. 3, 2008 at 7:07 AM
COMMENT:
As a family member, professional and advocate for many years, there are many positive ways to deal with the serious challenges of individuals so demanding. The money and the expertise is there. Our state and the people of Massachusetts need to find the will and the outrage to demand change and programs that really meet people's needs as human beings. Our family and many others have been able to do so but not without lots of work, research, advocacy and refusing to take NO as an answer.
Call your legislators
Posted by Bill | Jul. 3, 2008 at 6:51 PM
COMMENT:
Please do more than post message here. Call your state Senators and Representatives (617 722-2000) and express your outrage to them. Advocates have tried unsuccessfully for over 20 years to either ban aversive treatment or have tighter regulations. We need help from voters who are outraged!
Simplistic answers to complicated problems
Posted by Anonymous | Jul. 6, 2008 at 11:02 AM
COMMENT:
Massachusetts is notorious for short-term politically-sensitive solutions to problems that are political nowhere else. When someone develops a program that dependably out-performs JRI, there will be no more JRI. Until then, walk a mile in the shoes of parents who have no other options. Stories like Haleigh Poultre in today's Sunday Globe are not unique. Complicated questions demand complicated answers, unfortunately. Ask any MA baby boomer what state institutions were like prior to community-based treatment. JRI is like Disney World in comparison.
"Oversight" is definitely needed at JRC
Posted by Greg | Jul. 6, 2008 at 1:26 PM
COMMENT:
I am one of the former JRC staff quoted in this article. What is largely missing at JRC is state oversight, where appropriate individuals review the treatments that students are receiving on a regular basis and monitor what treatments are necessary after other methods have been exhausted. Every behavior for which student receives shocks needs to be monitored. Psychologists have left because they were not permitted to use other approaches published in psyciatric journals before resorting to shocks. JRC currently has free reign to shock students for minor behaviors. They use the major behaviors as an excuse, and continue to shock students after progress is made and other methods are available. Example: student shocked for closing his eyes for five seconds AFTER he quit self-abusive and aggressive behaviors and had become pleasant. That is when additional behaviors are stacked on without safegaurds that NEED to be implemented. In addition, nobody seems to monitor the stress of oth
the dehumanization of people with disabilities
Posted by barbara | Jul. 13, 2008 at 2:00 PM
COMMENT:
It is sad to see that Mr. Kix bought into the BRI/JRC brutality, and done his bit to contribute to the dehumanization of people with disabilities. There is no other class of people whose behavior would allow this kind of torture. Furthermore there are more deaths at BRI (omission)than described in this article and Iwata developed the SIBIS at Johns Hopkins (error, one of many) as well as many other errors or omissions. This article is a tragedy. Some of us loved our tough kids enough to work with them and keep trying.
torture
Posted by ellen | Jul. 15, 2008 at 8:38 AM
COMMENT:
Twenty three years ago when I was President of the Autism society in Massachusetts I wrote a letter to the Globe in reference to the BRI abomination. Here is an excerpt:" If I were to threaten to take a dog and shackle it, helmet it, deprive it of food and spray it with ammonia, I would be castigated and hanged by every jury in the land. Perhaps there is an underlying innate prejudice that relegates anything outside the norm to second-class status, and thus experimentation and abuse are viewed with callous indifference." 23 years later and the only thing that has changed is that the torture has been refined to astronomical proportions. Wrap it any package that you like, sanction it with desperate parents, throw a few sanctimonious PHDs at it and it still remains the same. It is torture. Shame on all of us for tolerating this criminal behavior. I thank God that my own son never fell victim to this heinous perversion.
Emotional and Physical Damage Done by Shock
Posted by Kevin | Jul. 18, 2008 at 3:00 PM
COMMENT:
From two whistleblower reports and media coverage I've seen, other autistic children and adults in the vicinity of the person about to be shocked also start screaming in terror when a JRC person reaches for their shock belt as they think that the shock may be meant for them. At times, these autistic people get shocked because they screamed in fear of possibly being shocked. This is barbaric and needs to stop -- as does the heavy drugging of the autistic in other facilities.
Since when are parents allowed to have their children abused?
Posted by Anonymous | Jul. 1, 2008 at 10:00 PM
COMMENT:
In response to: Since when are parents allowed to have their children abused? More often than you think. see www.cafety.org
torture?
Posted by Anonymous | Aug. 22, 2008 at 12:09 AM
COMMENT:
The last two pages give a really haunting argument for the use of GED. Read it before trying to argue. You can't address the issue by shutting down a solution you don't like. I myself think that if the punishments were less strict, tragedies could be averted. But I wonder how many more tragedies there would be without this torture/aversive treatment solution. Face it, little to no progress has been made in alternative fields. It's not enough to be useful. The GED is. If you actually manage to shut down the JRC or ban aversive treatment, you'd better take responsibility for those autistic, bipolar, troubled kids, because you're taking away their last lifeline.
DO SOMETHING ABOUT IT!
Posted by Anonymous | Sep. 21, 2008 at 11:06 PM
COMMENT:
Those of you who live in the states that regulate these treatment center must contact your government officials and put a stop to this. Call your local newspapers! TV stations! Please help these children. Please become involved.
Horrified To Learn of This
Posted by Anonymous | Sep. 23, 2008 at 11:07 AM
COMMENT:
I can't begin to tell you how shocked and horrified I am by this article. I can't believe this mode of treatment is being used in this age of advanced knowledge and heightened awareness of mental illnesses. I hope that public outrage will have some effect upon the people who are doing these things to human beings who are at the mercy of the system and those who run it.
Former Student
Posted by Anonymous | Oct. 13, 2008 at 4:15 PM
COMMENT:
As a former student who was on the GED, I can honestly attest that JRC is not the horror house the media portrays it to be. I can also attest that Dr. Israel is not the psycho people make him out to be. There are several things about JRC that I disagree with. But in all honesty, JRC gave me my life back. Before JRC, I was in and out of all kinds of placements and I was doped up on meds to the point of oblivion. Once I started at JRC and after the GED was implemented, I began living as normal a life as my disability would allow. The placements I was at prior to JRC told my parents that me graduating from high school and living a normal adult life would be nothing short of a miracle. Once I got to JRC, they told me and my parents that graduating from high school isn't a miracle, its a reality. And they were right, I did wind of graduating and with high honors I might add. It took a little longer and a little more effort than it would most people, but in the end I did it. As far a
Former Student (Continued)
Posted by Anonymous | Oct. 13, 2008 at 4:17 PM
COMMENT:
as the program itself is concerned, there are some things that I disagree with, especially when it comes to how the GED is used. However, if the GED were removed, the results would be nothing short of catastrophic. I do believe that JRC treats some behaviors with the GED that are unnecessary and I do believe that the approval process should a little more rigorous than it currently is. I truly don't believe that the GED is for everyone and I truly don't believe that it should be an common option in treating problem behaviors. However, when the alternative is self inflicted injury or death, being warehoused in hospitals or jails, or being doped up on meds to the point where you can't even recognize your own mother, there is a place for the GED. Kudos to the author for equally presenting both sides of this story which is something that journalist generally neglect to do when reporting about JRC.
that sloppy dresser gives shocks to kids for failing to dress neatly
Posted by KateGladstone | Jan. 7, 2009 at 3:33 AM
COMMENT:
Your article notes the sloppy dress habits of this torture-meister who (according to the procedural manual of the school he founded) requires administering electric shocks to children for "failure to maintain a neat appearance." (Google this phrase plus "JRC" to see documentation of this.) If Doctor Matthew Israel really believes in electric-shock teaching-by-torture as the key to a utopian society of the perfectly behaved, let him strap his machine onto himself and invite staffers and students to administer the punishment he commands for all such breaches.
I was once a staff at JRC
Posted by Marissa | Aug. 19, 2009 at 6:51 AM
COMMENT:
JRC was one of the worst schools you can ever imagine. The children were severely mentally reatarded and autistic, although regardless of this, they have been recieving multiple skin shocks for minor behavior. I mean come on these are people neverless, people with severe disabilitie, and some even none verbal. JRC seemed more like a jail than a school to me as they used transportation restraints on hands and even feet. Real prison like handcuffes, straightjackets, white noise helmets and even four point boards and four point chairs. The disabled persons there had absolutely no freedom, and most whom were constanlty restrained and got skin shocks. I once had to work at a JRC residence (Lorusso) and one of the patients was on the phone with her mother. I was asked to stand near the phone and monitor their conversation. I mean how could that be? Whenever a patient was on the phone his/her conversation had to be monitered. That sounds like no privacy or human rights whatsoever to
Somebody should shut this sicko operation down
Posted by Daniel | Feb. 28, 2010 at 11:23 PM
COMMENT:
By whatever means necessary. Where's the scholarly research showing that these bizarre and cruel methods even work? Certainly the burden of proof for their effectiveness lays on the practitioners, but after 30 years there's zilch in terms of peer-reviewed documentation that this torture actually helps anyone. I don't know how much this quack Israel paid the judges involved, but there's no other explanation for their suspension of moral concern and legal reasoning. I say put this David Koresh-Joseph Mengele monstrosity in front of a jury before he meets a worse fate at the hands of a vigilante mob.
who else
Posted by Anonymous | Mar. 4, 2010 at 12:15 AM
COMMENT:
If JRC did not care who would? They do need to do more to fix the public perception but "SHOCK THERAPY" Sounds so evil even thought it is not even close to ECT. What is to be done with these children let them self destruct or what?
School of HORRORS!!!!
Posted by Anonymous | Aug. 18, 2011 at 11:21 AM
COMMENT:
As a former student, I will say that JRC is the most horrendous place that I have ever been to! From scratching out student's lenses on the Ipod's to the electric skin shocks, I have seen practically all the horrors that this school holds. They would restrain someone for about 8 hours on a restraint board, or 15 hours in a mechanical/physical hold. Or how about the fact that when my face was swollen up from a MRSA Infection, they would be restraining me and rubbing my swollen side of my face into the floor. This school should be shut down, I still can't describe all the horrors that I have seen there, and am still having nightmares from this place!
 
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