Feature Article

The Shocking Truth

By Paul Kix

Page 7 of 7


The kids who come to JRC often arrive heavily medicated. This is its own form of torture. Many of their parents write to politicians saying as much.

Joseph Assan's daughter, Amanda, of Queens, New York, was so snowed on psychotropic drugs—all of them prescribed by doctors at her treatment center—that she had to go to detox at 16. Once she returned to school, and was put on new meds, she ballooned to nearly 300 pounds. At JRC she's back to her normal weight and is off medication.

Roger and Barbara Forbes's son David was in a mental hospital before JRC. Upon his discharge, a pharmacist paused when asked to fill the prescription: He thought Roger had altered it. But sure enough, David was supposed to take 900 milligrams of Thorazine—a drug that was once seen as a viable alternative to a lobotomy—per day. The Forbeses say JRC saved David's life.

The letters go on. New York resident Charles Bryant says staffers at his son's previous school woke him up just to take more medication. Today Bryant calls Israel a "guardian angel."

Doris and Robert Hobbs of Northborough agree. Before JRC, their nephew, Marc, took the drugs prescribed to him until they induced a coma in 2004. He didn't wake up for nine days. He's now medication-free.

He's lucky, because drugs can do more harm than that. Attention deficit hyperactivity disorder is one of the diagnoses for which kids are admitted to the Judge Rotenberg Center. A leading prescription for ADHD, Ritalin, has been linked to 30 childhood deaths this past decade, says the American Heart Association. Another illness for which kids are admitted to JRC is bipolar disorder. A 2007 study funded in part by the National Institute of Mental Health showed a fortyfold increase over the last 10 years in diagnoses among young people. But the Food and Drug Administration has approved no antidepressants to treat bipolar disorder in children, and only one antipsychotic. Children are instead given medications approved for adults—"off-label" prescriptions, they're called in the business—the side effects unknown. Well, not entirely. Rebecca Riley, a four-year-old from Hull, died in 2006 from an overdose of the medications prescribed to treat her bipolar disorder. In that same year, Massachusetts had 8,343 kids on off-label bipolar drugs, according to MassHealth.

Medications' side effects have always been apparent to those who send their kids to Israel's school. After Vincent Milletich died in 1985, some parents staged a press conference to counter the uproar. One father, Garrett Lamanna, of Newark, Delaware, thought it ironic that Milletich's death had drawn such attention, and yet every year children die from overmedication and the public barely notices.

Ultimately, you must make a choice. Drug-induced stupor or a two-second skin shock. Medication without end, and often without benefit, or the once-a-week skin shock the typical JRC student receives.

There's a reason Evelyn Nicholson is the only parent suing the school, and it's the same reason the legal guardian of the student shocked 70-some times said in the Disabled Persons Protection Commission report that, before that August night, he had been "totally happy" with JRC and the boy had shown the "most improvement" while there. It's why Eddie Sanchez, brother of Representative Jeff Sanchez, took his son Brandon off the machine at the state hearing in January. Jeff Sanchez let Brandon slap himself in front of all his fellow legislators, the slaps echoing through the room, alarming bystanders and twisting Brandon's neck hard against his right shoulder. It's the same reason why Eddie testified moments later, "If it were not for this program, my son would be dead. And if it weren't for that, I would blow his freakin' brains out. That's what I would do for my son."

This is love. It is so strong that the parents of the Judge Rotenberg
Center would rather shock their children than see them hurt any more, so strong that they would rather kill their own than have them face life without the machine.

Originally published in Boston magazine, July 2008
 

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User comments

Child abuse
Posted by | Jul. 1, 2008 at 2:05 PM
COMMENT:
Since when are parents allowed to have their children abused? DSS would intervene in any other situation, if children were being hurt, except at JRI. Why doesn't the Commonwealth force the school to use positive behavioral intervention with the same intensity and staffing numbers and then state knowledgeably whether the behaviors can be modified without punishment.
It's time to wake up
Posted by | Jul. 3, 2008 at 7:07 AM
COMMENT:
As a family member, professional and advocate for many years, there are many positive ways to deal with the serious challenges of individuals so demanding. The money and the expertise is there. Our state and the people of Massachusetts need to find the will and the outrage to demand change and programs that really meet people's needs as human beings. Our family and many others have been able to do so but not without lots of work, research, advocacy and refusing to take NO as an answer.
Call your legislators
Posted by | Jul. 3, 2008 at 6:51 PM
COMMENT:
Please do more than post message here. Call your state Senators and Representatives (617 722-2000) and express your outrage to them. Advocates have tried unsuccessfully for over 20 years to either ban aversive treatment or have tighter regulations. We need help from voters who are outraged!
Simplistic answers to complicated problems
Posted by | Jul. 6, 2008 at 11:02 AM
COMMENT:
Massachusetts is notorious for short-term politically-sensitive solutions to problems that are political nowhere else. When someone develops a program that dependably out-performs JRI, there will be no more JRI. Until then, walk a mile in the shoes of parents who have no other options. Stories like Haleigh Poultre in today's Sunday Globe are not unique. Complicated questions demand complicated answers, unfortunately. Ask any MA baby boomer what state institutions were like prior to community-based treatment. JRI is like Disney World in comparison.
"Oversight" is definitely needed at JRC
Posted by | Jul. 6, 2008 at 1:26 PM
COMMENT:
I am one of the former JRC staff quoted in this article. What is largely missing at JRC is state oversight, where appropriate individuals review the treatments that students are receiving on a regular basis and monitor what treatments are necessary after other methods have been exhausted. Every behavior for which student receives shocks needs to be monitored. Psychologists have left because they were not permitted to use other approaches published in psyciatric journals before resorting to shocks. JRC currently has free reign to shock students for minor behaviors. They use the major behaviors as an excuse, and continue to shock students after progress is made and other methods are available. Example: student shocked for closing his eyes for five seconds AFTER he quit self-abusive and aggressive behaviors and had become pleasant. That is when additional behaviors are stacked on without safegaurds that NEED to be implemented. In addition, nobody seems to monitor the stress of oth
the dehumanization of people with disabilities
Posted by | Jul. 13, 2008 at 2:00 PM
COMMENT:
It is sad to see that Mr. Kix bought into the BRI/JRC brutality, and done his bit to contribute to the dehumanization of people with disabilities. There is no other class of people whose behavior would allow this kind of torture. Furthermore there are more deaths at BRI (omission)than described in this article and Iwata developed the SIBIS at Johns Hopkins (error, one of many) as well as many other errors or omissions. This article is a tragedy. Some of us loved our tough kids enough to work with them and keep trying.
torture
Posted by | Jul. 15, 2008 at 8:38 AM
COMMENT:
Twenty three years ago when I was President of the Autism society in Massachusetts I wrote a letter to the Globe in reference to the BRI abomination. Here is an excerpt:" If I were to threaten to take a dog and shackle it, helmet it, deprive it of food and spray it with ammonia, I would be castigated and hanged by every jury in the land. Perhaps there is an underlying innate prejudice that relegates anything outside the norm to second-class status, and thus experimentation and abuse are viewed with callous indifference." 23 years later and the only thing that has changed is that the torture has been refined to astronomical proportions. Wrap it any package that you like, sanction it with desperate parents, throw a few sanctimonious PHDs at it and it still remains the same. It is torture. Shame on all of us for tolerating this criminal behavior. I thank God that my own son never fell victim to this heinous perversion.
Emotional and Physical Damage Done by Shock
Posted by | Jul. 18, 2008 at 3:00 PM
COMMENT:
From two whistleblower reports and media coverage I've seen, other autistic children and adults in the vicinity of the person about to be shocked also start screaming in terror when a JRC person reaches for their shock belt as they think that the shock may be meant for them. At times, these autistic people get shocked because they screamed in fear of possibly being shocked. This is barbaric and needs to stop -- as does the heavy drugging of the autistic in other facilities.
Since when are parents allowed to have their children abused?
Posted by | Jul. 1, 2008 at 10:00 PM
COMMENT:
In response to: Since when are parents allowed to have their children abused? More often than you think. see www.cafety.org
torture?
Posted by | Aug. 22, 2008 at 12:09 AM
COMMENT:
The last two pages give a really haunting argument for the use of GED. Read it before trying to argue. You can't address the issue by shutting down a solution you don't like. I myself think that if the punishments were less strict, tragedies could be averted. But I wonder how many more tragedies there would be without this torture/aversive treatment solution. Face it, little to no progress has been made in alternative fields. It's not enough to be useful. The GED is. If you actually manage to shut down the JRC or ban aversive treatment, you'd better take responsibility for those autistic, bipolar, troubled kids, because you're taking away their last lifeline.
DO SOMETHING ABOUT IT!
Posted by | Sep. 21, 2008 at 11:06 PM
COMMENT:
Those of you who live in the states that regulate these treatment center must contact your government officials and put a stop to this. Call your local newspapers! TV stations! Please help these children. Please become involved.
Horrified To Learn of This
Posted by | Sep. 23, 2008 at 11:07 AM
COMMENT:
I can't begin to tell you how shocked and horrified I am by this article. I can't believe this mode of treatment is being used in this age of advanced knowledge and heightened awareness of mental illnesses. I hope that public outrage will have some effect upon the people who are doing these things to human beings who are at the mercy of the system and those who run it.
Former Student
Posted by | Oct. 13, 2008 at 4:15 PM
COMMENT:
As a former student who was on the GED, I can honestly attest that JRC is not the horror house the media portrays it to be. I can also attest that Dr. Israel is not the psycho people make him out to be. There are several things about JRC that I disagree with. But in all honesty, JRC gave me my life back. Before JRC, I was in and out of all kinds of placements and I was doped up on meds to the point of oblivion. Once I started at JRC and after the GED was implemented, I began living as normal a life as my disability would allow. The placements I was at prior to JRC told my parents that me graduating from high school and living a normal adult life would be nothing short of a miracle. Once I got to JRC, they told me and my parents that graduating from high school isn't a miracle, its a reality. And they were right, I did wind of graduating and with high honors I might add. It took a little longer and a little more effort than it would most people, but in the end I did it. As far a
Former Student (Continued)
Posted by | Oct. 13, 2008 at 4:17 PM
COMMENT:
as the program itself is concerned, there are some things that I disagree with, especially when it comes to how the GED is used. However, if the GED were removed, the results would be nothing short of catastrophic. I do believe that JRC treats some behaviors with the GED that are unnecessary and I do believe that the approval process should a little more rigorous than it currently is. I truly don't believe that the GED is for everyone and I truly don't believe that it should be an common option in treating problem behaviors. However, when the alternative is self inflicted injury or death, being warehoused in hospitals or jails, or being doped up on meds to the point where you can't even recognize your own mother, there is a place for the GED. Kudos to the author for equally presenting both sides of this story which is something that journalist generally neglect to do when reporting about JRC.

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