The World Mourns Sam Berns

The Foxborough High School junior passed away Friday at the age of 17.

Sam Berns, the Foxborough High School junior who suffered from Progeria, known as the “Benjamin Button” disease, a fatal genetic condition that causes rapid aging, passed away Friday. He was 17.

Berns, who was diagnosed at 22-months-old, captivated the world with his witty personality and charm in the HBO documentary, “Life According to Sam” which aired in October 2013. The film followed Sam’s life for three years. His parents, Dr. Leslie Gordon and Dr. Scott Berns, created the Progeria Research Foundation in 1999. Sam said that he hoped that his mother could stop researching one day. “I kind of just want my mom to be done with progeria for her sake, because my mom will keep working forever until progeria is cured,” he told ABC news. His parents released a statement through the foundation announcing Sam’s death:

“The entire [Progeria Research Foundation] community mourns the loss of this remarkable young man who not only inspired [Progeria Research Foundation]‘s creation, but also touched millions of people worldwide.”

Sam had fans around the world, but nowhere more than here in the Boston area, where he was an Eagle Scout, a member of the Foxborough High School marching band, and a fixture on the sports scene. Robert Kraft spent time with Sam over the years and had extended him an invitation to be honorary captain at the Patriots playoff game Sunday. Part of Kraft’s statement is below:

“I loved Sam Berns and am richer for having known him. He was a special young man whose inspirational story and positive outlook on life touched my heart. I am so lucky to have had the opportunity to spend time with him and to get to know his incredible family. Together, they positively impacted the lives of people around the world in their quest to find a cure for Progeria. The HBO documentary, ‘Life According to Sam’ shared his incredible story with a national audience. It was so beautifully done. It made you laugh. It also made you cry. Today, it’s the latter for all who knew Sam or learned of his story through that documentary.”

Tweets of support came pouring in after hearing of Sam’s passing:

 

 

 

 

The Bruins honored Sam in November 2013 before a game:

Here’s Sam’s 2013 TED Talk titled, “My Philosophy for a Happy Life”:

ADVERTISMENT

  • jimfowler

    He was a very special young man for sharing his story and illuminating the world with his presence. God Bless his family and know that Sam’s legacy will continue to live on.

  • Margaret Eguchi

    My husband and I loved Sam Berns, and his parents. We were heartbroken like so many to hear of his passing. We will not forget
    the joy he brought as we learned and listened intently to his story.
    We so enjoyed his sense of humor, and his strong and positive approach to life. Our prayers are with his family at this very sad
    time.

  • Pastor Donna Dupuis Dunbar

    Angels come in many forms. Everyone who had the good fortune of knowing Sam will tell you that he was one of them. He taught us all how to love life.