Four years ago, Thomas Manning received devastating news: He had cancer and needed to have his penis amputated. This, of course, took a toll on him both psychologically and physically. Manning, though, was undeterred and later became just the third person—and the first American—to receive a penis transplant. The pioneering surgery, performed at Massachusetts General Hospital in May, lasted for 15 hours and has since been heralded as a major medical breakthrough. Today, Manning, 64, is cancer-free and waiting for doctors to tell him it’s safe to pop a Viagra. Talking with him at his home in Halifax, one thing becomes remarkably clear: Manning is not shy about anything.
What were the circumstances that led you to volunteer for this experimental surgery?
Let’s start four years ago when I had an accident. I had slipped on some black ice while working. I was pushing a cart that carries moving boxes. It went up in the air, too, and landed on me—on top of my stomach—and pushed 30 percent of my colon down into my groin. While I was being treated at Mass General, doctors performed all of these tests on me. At first, they couldn’t find anything. But then one doctor was examining my groin and all of a sudden said, “You have cancer.” They biopsied a piece of my penis and confirmed I had cancer. They said the only treatment available was that the entire penis had to be removed. They were worried it was in my lymph nodes. More than a week later, the doctor amputated my penis.
What were the psychological consequences and the physical challenges of having the amputation?
It was a real kick in the chops. I actually thought I was going to die. Then I thought I was going to have tubes forever hanging off of me. I wondered how I was going to go to the bathroom. The doctor told me not to jump to conclusions. When I woke up from the surgery, my penis was gone and they had put in a catheter. I didn’t look at it for a few days—maybe three days. I didn’t have the courage to look at myself.
Were there physical complications?
One after another. One of my testicles blew up to the size of a basketball. All of this fluid had built up in it. So here I am with my penis chopped off and my testicles blown up. They had to operate again. I was thinking what everyone else probably would be thinking: What kind of guy am I going to be? Am I going to be disabled for the rest of my life? I confronted it. How was I supposed to feel? You’re never the same after something like this.
How did you pee?
They sent me home with a catheter and I became rather comfortable with it. I think it made it easier for me to learn to accept the position that I was in. Without the catheter, I just had a wound, and you couldn’t expose that wound. The only way to deal with it was with a catheter.
Did you still think about sex?
I didn’t think there was going to be any more of that. I just came to terms with it. I didn’t dwell on it.
Were you resigned to living the rest of your life without a penis?
Oh, yeah. I wasn’t getting anywhere with the doctors for a long time. Your whole life is upside down. I was dealing with it, but I kept thinking there were [other patients in the hospital] all around me who were much worse.
So how did you end up consulting a medical team about a penis transplant?
I didn’t sit around and wait. I wanted this and kept pushing my doctors to ask about it. They initially told me I wasn’t a candidate for it because I had a heart condition. So they put me on the inactive list. Right away, I called my doctors to get a cardiologist appointment so that I could limit the risk [from my] heart condition and be considered a better candidate for the transplant and surgery.
What did your doctors tell you about the realities of having a transplant? Were there major risks?
Yes. It was a 16-hour-long surgery, so they were concerned about my heart condition. The real tough part of this, though, was the medication that I would need to take to stop the body from rejecting the transplant. They told me it would knock years off my life because of the stress it puts on your body and kidneys. I was initially very concerned about that.
Was there any talk about the size, girth, and skin tone of the donor’s penis?
The only concerns were about skin tone and blood type. Those were the two things they look to match up. Everything else is hit or miss.
How did they find a donor?
I went on a list, the donor list.
Were there challenges in finding a consenting donor?
I had type B blood, and that’s pretty rare. I was pretty lucky that they found a donor. I was lucky because I was ready, they were ready, and we found a donor within our time frame. Everything just came together.
Do you know anything about your donor?
They didn’t give us much information at all. This person had died in Maine. Eight people received organs from this donor. The doctors were there [just before he died] and had a religious service. All of the family members were with the doctors and said prayers. He was kept on the machine while they said their prayers and then they [removed] the organs, and he was taken off the machine.
You kept the fact that you were planning to undergo transplant surgery a secret from your family until just before the procedure. Why is that?
I initially had told some people, but then the doctors canceled plans for the procedure. I didn’t want to tell my family again that I was going to do it, and again have it not happen. I wanted to wait, and for them to know that it was really happening. I had been telling them for four years how I wanted a transplant and I think many thought I was just blowing smoke. I just didn’t want it to be a false alarm. That would’ve been a huge disappointment for me. I knew this was going to be a big deal.
What was your family’s reaction?
Some of them didn’t find out until they saw me on TV talking about it. I don’t know how they all feel about it. Some of them came to the hospital.
Were you concerned about being stigmatized, given that this is such a rare procedure and such a socially sensitive part of the anatomy?
Any time you’re dealing with the penis, vagina, or breasts, it’s sex, sex, sex. Everything gets blown out of proportion and becomes “dirty.” When you’re dealing with this straight up and bluntly, it’s really just life itself. Life is dirty sometimes. I really wasn’t concerned with it too much.
Walk me through the first time you looked at your new penis. What was going on in your head and what was your initial perception?
It was tough. It was black and blue—and I mean black and blue. I was all cut up—I had stitches everywhere. I took one look at it three days after the surgery, and I was in shock. It knocked me down and I couldn’t believe it. I looked at it a couple of times and then I didn’t want to look at it anymore. I wanted it to heal and do what it’s supposed to do. If I were to keep looking at it and dwelling on it, it would’ve gotten to me and I didn’t want it to. So I gave it time, and when it was ready, it would be ready. I didn’t look again until a week later.
Where are you in terms of recovery? Is there still a chance that your body could reject the transplant?
It’s not like you’re dealing with a kidney or liver. You can see if it’s working or not. My doctors tell me your body can reject it at any point. But so far, so good. The doctors tell me I’m doing well.
So is the team of surgeons closely monitoring you and documenting your progress?
I won’t have full feeling there until March, but they think I’m ahead of schedule. I’m at the hospital frequently.
Many people would shy away from talking about this. Why are you so candid, and what has the response been?
I have a choice. I can be up front or I can hide. If I lie about it, then it turns into another lie after another lie. I’m just not in the mood to cover up something that I just don’t have to. If other people can’t deal with it, they can’t deal with it. I mean, it’s always going to be there, so what am I going to do?
What was it like to go on national television to discuss your experience?
I was on The Dr. Oz Show, and people still stop me and ask about it. You get so many different responses. The majority of people are pretty intrigued and don’t give me grief about it. I know people have jokes, but I won’t let anyone joke about the donor. I won’t tolerate that. That donor can’t fight for himself, so I have to stand here and be his surrogate and speak for him.
Is there any type of physical therapy that you have to go through?
No. The only physical therapy I had was initially getting out of the hospital, and whether I could walk up the stairs. There’s not a lot of physical therapy you can do for this, if you know what I mean.
How does it work? What is a successful outcome in the eyes of your doctors, and what is a successful outcome in your eyes?
The first milestone was, could I use the toilet? They didn’t think that would happen for a while, but they were very, very happy with the progress because it happened so fast. They say I’ll be able to do everything I’m supposed to do—go to the john, have a sex life, and regain full sensation. In my eyes, if I have to live without one of those things, then I learn to live without. I’ll learn to live with what I have. I expect to be in and out of the hospital for a long time. There are so many things involved here.
Based on what you’re telling me, I assume you’re not able to masturbate or have sex with your new penis?
Not yet, and I’ll tell you up front, I’m not even going to attempt to do that until March, maybe longer.
Are you nervous about that?
I’m not dwelling on it. You know, it’s important to me that I can do that. If [sex or masturbation] does happen, it would be a miracle, if you really think about it. I mean, when you think about what I had four years ago compared to what I have now—that’s a lot. It’s emotional for me. I get emotional about this. I sometimes want to be alone to think about how I really feel about this. I belong to a very exclusive club.
Source URL: https://www.bostonmagazine.com/health/2016/12/11/thomas-manning-penis-transplant-interview/
Copyright ©2020 Boston Magazine unless otherwise noted.